Eva-Adeline with Rett Syndrome Can Now Hug Her Mother

Four-year-old Eva-Adeline from Estonia, diagnosed with rare Rett Syndrome at age two, has been undergoing treatment for six months and her family reports a marked improvement in her condition. Estonia raised €323,800 at the end of last year to provide necessary treatment for four girls with Rett Syndrome. The first results are encouraging, the girl now initiates hugs and calmly tolerates movement.

Four-year-old Eva-Adeline from Estonia has given her family something they deeply longed for, a hug. The girl was diagnosed with a rare genetic disorder called Rett Syndrome at age two, but after six months of treatment, noticeable changes have emerged.

"I don't remember that period of our lives because my mind refused to believe it. A very painful and strange feeling. It was as if I was grieving for my daughter while holding her in my arms at the same time. She needed me more than ever before," recalls Eva-Adeline's mother Heidi about the time of diagnosis.

Treatment Results Exceeded Expectations

Now the family has reason to celebrate. According to Heidi, Eva-Adeline now initiates hugs, curiously explores her surroundings, and calmly tolerates travelling in both cars and buses, everyday activities that were previously difficult. "The treatment has helped significantly improve the child's brain function," says Heidi.

These changes have made family life more stable and brighter, she adds.

Over €300,000 Raised in Estonia

At the end of last year, Estonia raised a total of €323,800 to provide access to treatment for four girls with Rett Syndrome. Eva-Adeline is one of four children for whom these funds were collected. The first results are now in and they offer hope to both families and everyone who contributed to the fundraising.

Rett Syndrome is a rare genetic disorder that primarily affects girls and causes serious problems with brain function, movement, and communication.